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ChronicFatigueSyndromeSupport.com

09-05-2007

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 ProHealth's
ME/CFS HealthWatch
Highlights:
· Q&A w/ Dr. Lucy Bateman
· Dorothy Wall on the Name Change
· UK acknowledges ME/CFS is real
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FOUNDER'S CORNER September 5, 2007

 Name Change Campaign: The Choice Is Yours!
After years of suffering the injustices of the name 'Chronic Fatigue Syndrome', we are just months away from implementing a new name that will help us gain the recognition and support that we deserve. The name change campaign is alive and well, with a move toward the use of ME/CFS, making patient unity and support crucial in moving forward with its implementation.


ARTICLES, EVENTS, SOLUTIONS See 3 more new articles

 Live Q&A session with dedicated ME/CFS & FM doctor
Do you have questions about FM & ME/CFS symptoms, treatments, and new studies that your own doctors can't answer? Join the chat with Dr. Lucinda Bateman, MD, September 7 - 3 to 4 pm Pacific time (6 to 7 Eastern).


The Right Name, the Right Strategy, the Right Time - Let's Do It
"My writings...have used the names CFIDS and CFS, reflecting the common usage of the time. I believe I'm not alone in sensing a vital shift within the patient and advocacy community, and in feeling that the time has come to call this illness ME/CFS," writes Dorothy Wall, author of Encounters with the Invisible.

UK Issues Guidelines for Diagnosis & Management of Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (or Encephalopathy)
On August 22 the UK unveiled a CFS/ME diagnosis & treatment guideline for National Health Service doctors - plus an explanation for patients. Read a summary of the guide, and see what the press has to say.


RESEARCH ABSTRACTS See 8 more new abstracts

Norway advises doctors to support, not dismiss, CFS patients' needs
A Norwegian Health Services review observes that physicians who "authoritatively" question the legitimacy of CFS patients' illness increase their suffering - advises support for needed coping and recovery instead.


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LETTERS FROM OUR READERS
Letter of the Month
"Discovering My Contribution to Humanity" - the Letter of the Month was written by Susan Herzberger. Susan wins a $100 gift certificate for ProHealth supplements.
Name Change Discussion
· Importance of name change
· ME but not CFS
· Not ME, not CFS
· Keep CFS
Comments & Questions
· Lyme & Marshall Protocol
· Striving to stay active
· Wiki model for studying CFS
· Acupuncture, herbs & CFS
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WEEKLY INSPIRATION


"I got a chain letter by fax. It's very simple. You just fax a dollar bill to everybody
on the list." - Steven Wright


Seeing the Beauty in Life
Seeing the beauty in life hasn't come easy for some of us with chronic pain. Our lives had become a pattern of shattered dreams and faded hopes... Somehow we had lost track of the beauty that lies within ourselves. For some, that was our past and for others, it is our present. Learning to see the beauty in our lives begins with reshaping our attitude and beginning to feel grateful for what is around us. At first we may have a difficult time of this and become discouraged... But as we progress in our recovery, we are sure to begin seeing the beauty in our lives.

From Living With Chronic Pain One Day At A Time by Mark Allan Zabawa

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