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ProHealth to Adopt Patients' Requests for Separate FM & CFS Newsletter Editions

We have become the Web's leading news authority on Fibromyalgia and Chronic Fatigue Syndrome, publishing the world's most subscribed to FM and CFS newsletter - with a circulation now approaching 100,000. In our quest to keep patients and doctors updated on CFS and FM, we have built huge databases on research, news, and articles for both diseases, with an awesome library of over 7,000 pages of information. Patients and doctors alike frequently begin and end their CFS and FM research on our first and largest Web site, www.ImmuneSupport.com.

Information Overload
Our reputation for providing clear, timely, and accurate CFS and FM information has been an important goal at ProHealth, and has become one of the best ways we fulfill our mission - to empower CFS and FM patients. Now epidemiological and clinical findings indicate that these are two separate diseases that share similar clinical presentations and possible etiologies. Given this, both diseases deserve special care and attention. From now on, rather than overload our newsletters with information on both CFS and FM, we will create separate newsletters.

The Solution: Two is Better Than One
Creating separate CFS and FM newsletters is obvious but daunting. Nonetheless, patients (and doctors) have spoken, and we have listened. So beginning next week, ProHealth will begin publishing a separate biweekly newsletter for both CFS and FM. Instead of receiving a weekly newsletter containing information on both CFS and FM, you will receive a newsletter that addresses what's most relevant to you.

What Should You Do?
The answer, in short, is nothing. We are doing the work for you, and you will continue to receive your weekly newsletter but with one big difference: The FM and CFS newsletter will alternate every other week. If a topic is relevant to both CFS AND FM, it will appear in both the CFS and FM version of the newsletters. Not interested in receiving both biweekly newsletters? Just unsubscribe to the one you don't want, and you will continue to receive the one that you do want. It is just that easy.

I am Honored You Chose ProHealth
I am honored to be involved with ProHealth—the largest private fundraising organization in the world for CFS and FM. And I am honored that you have chosen ProHealth to be your source of CFS and FM news and information. Please let us know what you think of our upcoming newsletter changes.

Thank you for supporting our cause by purchasing your health care products from ProHealth.

I wish you for a healthy, happy summer.

Sincerely,

Rich Carson
ProHealth founder and CFS patient

Traveling CFS Photo Exhibit Is on the Move!

The traveling Faces of Chronic Fatigue Syndrome photo exhibit - really a set of seven-foot-tall banners featuring the very-different faces and statements of eight people with CFS, plus two doctors who care about them - is on the road. One of the faces is ProHealth Founder Rich Carson. How will you know when it's due in your town?

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Both Genetic Relationship and Close Household Contact Risk Factors for CFS

A new study by the New Jersey Chronic Fatigue Syndrome (CFS) Association found that the syndrome occurs in the family members of physician-diagnosed CFS patients much more frequently than in the general population.

This holds true not just for the blood relatives of CFS patients - particularly their offspring - but also for the unrelated spouses and partners sharing their households.

Incidentally, 69 percent of the CFS patients whose families were studied also were diagnosed with Fibromyalgia.

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Pharmaceutical Drugs in the News

Patent for Antidepressant Zoloft Expired June 30

Competition from generic copies of the formerly patented drug will bring prices for the medication down sharply. As a rule of thumb, analysts agree, the price of a drug that loses its patent tends to drop 80 percent within the next year.

As tested in the FDA approval process, a generic drug is a copy that must have the same active ingredients as the brand name drug and be the same "in dosage, safety, and strength, how it is taken, quality, performance, and intended use." But by trademark law it must not look identical to the branded drug; and colors, flavors, and certain other inactive ingredients may be different.

FDA Approves First Drug for Seasonal Depression

On June 12 the FDA announced its approval of a new prescription drug, Wellbutrin XL, "for prevention of major depressive episodes in patients with a history of seasonal affective disorder (SAD)," or winter blues.

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The Treatment of Chronic Fatigue Syndrome and Fibromyalgia
by Dr. Charles Lapp, MD, ProHealth Medical Advisory Board Member

Editor's Note: Following is the transcript of a lecture that Dr. Lapp, a medical advisor to the CFIDS Association of America, delivered in Nashville, TN, in April 1997. While recent research may have added to or superseded our knowledge on certain topics, there is still a lot of good basic information here on CFS (and Fibromyalgia, which Dr. Lapp considers "pretty much the same"), and a lot of value in Dr. Lapp's experience-based opinions on various treatment possibilities

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Cable Network Running Fibromyalgia Public Service Announcement

Thirty-second public service announcements to raise awareness of Fibromyalgia started to run Monday, June 26 on the Adelphia cable TV network, the nation's fifth largest with a presence in 31 states.

The PSA spots, which will run for two weeks with no set schedule, feature Lynne Matallana, president and founder of the National Fibromyalgia Foundation, as well as Adelphia staffer Tammey Hays, whose mother has Fibromyalgia. "I know how important it is for people, like my mother, to have public acknowledgement of their experiences with Fibromyalgia," says Ms. Hays.

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New Epidemiological Findings Suggest FM Affects 12 Million Americans

The first-ever large population-based analysis of U.S. Fibromyalgia incidence, just released, indicated an occurrence rate of about 4.2 percent, in a national health plan population of 62,000 enrollees. The national data also indicate that the difference in incidence between females and males is much smaller than many previous studies indicated.

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Weekly Inspiration

The Power to Reduce Pain

We may not have the power to take away 100 percent of our pain, but we do possess the power to reduce our pain and its effects. This is known as managing our pain.

It is the ability we have to bring about change and the way we react to our pain, so we may lead a full and productive lifestyle.

This concept alone is useless without our participation. We are in charge of using our powers; not the doctors, our spouses, or our friends. Our powers are ours and it is up to us to use them accordingly.

Finding and learning how to use the powers within may take time to develop. There will be times of triumphs and times of disappointments. But eventually we will have learned how to reduce, manage, and live with our pain.

From "Living with Chronic Pain One Day At A Time" by Mark Allen Zabawa

Your Feedback Counts!

At ProHealth we are committed to bringing you the most up-to-date information on Chronic Fatigue Syndrome and Fibromyalgia. We are always striving to improve our services, and your opinion counts. If you have any comments or suggestions, please let us know.

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